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T.B, family secrecy, involuntary lockup and treatments

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Hilltop TB Sanatorium, Verona, 1907
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The first modern sanatorium for treating tuberculosis was the Royal Sea Bathing Infirmary for Scrofula, founded by a Quaker physician in Margate in 1791. Built for 36 patients and later expanded, the building was designed so patients could sleep on open but protected balconies and spend the day in gentle exer­cise or resting on the beach.

English Dr George Bodington wrote a scathing attack on other TB treat­ments in 1840, including imprisoning patients in sealed rooms at home. Unknown at the time, this treatment infected their caregivers and family members. Dr Bod­ington rented a house and op­ened a san­at­or­ium where patients could en­joy the fresh dry air, exercise and a good diet. The med­ical estab­lishment respond­ed harshly, with many noted doctors con­demn­ing his approach; TB referrals to his san­at­orium waned. So he dev­oted the remainder of his profess­ional life to the care of the mentally ill.

Jewish Consumptives’ Relief Society, Denver
c1930 
Photo credit: Beck Archives, University of Denver

A German Dr Hermann Brehmer opened the first sanatorium in the Bavarian Alps in 1854. It was a live-in hospital made of cabins where patients could get fresh air, good food, presc­ribed rest and exercise. Brehmer had weatherproof wooden bench­es fixed into the ground at regular in­tervals along the forest paths. This life offered a de­gree of remission to some patients, by help­ing to streng­then their own immune systems. Sanatoria also gave the bene­fit of separ­ating the infected from others, sometimes for years. 

The first U.S sanatorium opened in 1885 in Saranac Lake New York by an American doctor who had planned to live in the Ad­ir­ondack Mountains. Dr Trudeau had read about the Brehmer approach and sought to replicate it. He also read of Dr Robert Koch’s disc­overy of the TB bacterium and set up his own ex­periments to test germ theory on animals, to quant­ify the sanatorium treatment. 

See how the architecture of a building could be purpose-designed for a TB sanatorium. External space was allocated for patients at the Jewish Consumptives’ Relief Society Denver who participated in heliotherapy/sun exposure as a treatment for TB. 

The many sanatoria accommodated a small fraction of the millions of TB victims. Wanting to avoid deaths, sanatoria often did not accept people with advanced disease. And because of the cost of sanatorium care, poor patients were left to die at home with their families. The death rate in sanatoria or at home were the same i.e half of pat­ients died. So the secrecy within these families was intense. 

Once antibiotics were discovered in the 1940s, they provided a real cure for TB, so sanatoria declined and closed. But even though the sanatoria had not cured TB, they did provide a long-term bene­fit to families and society.

In c1930 my paternal grandmother disappeared from her home, leaving her husband and 6 children alone. The oldest two children were mat­ure enough to stay at home, but the four youngest boys were separated and each lived with an aunt or uncle. Apparently my grand­mother had TB and was sent to a sanatorium in a country reg­ion an hour outside Melbourne, for an unknown number of years.

The boys were told that family secrecy was essential, that they were never to mention TB at their primary school or Sunday School. But they did know that TB was so infectious that they could NEVER visit the sanatorium, open a letter their mother wrote or handle the embroidered or knitted gifts that their mother made and posted to them. My father didn’t even remember how long his mother had been absent.

Willard State Hospital, NY

See an analysis of being locked away, for mental problems and not for TB. Nonetheless the isolation seemed the same. Willard Asylum in New York's Finger Lakes admitted its first pat­ients in 1869. Many of the early res­id­ents arrived after years of incarceration and mistreatment in dismal alms houses. Before long, Willard grew into a sizeable vil­lage, relying heavily on unpaid patients labouring in the farm, bakery, kitchens and indust­rial factories. Factory-sized brick buildings housed patients, while the more opulent residences were designated for staff.

By the early C20th, the patient numbers in Willard State Hospital rose steadily, with over-crowded wards and deteriorating condit­ions. The hospital's original purpose as a healthy rural retreat was lost in the grim realities of institutional life.

Willard's population reached an all-time high of 4,076 in 1955, and conditions within the institutions were harsh. By then state hospitals began to use newly developed anti-­psychotic drugs to control patients crammed into tight living quarters. In the early 1970s, new laws promoted patients' rights and resulted in a shift away from long-term institutionalisation.

50,000+ patients had been admitted to Willard during its 126-year history, and nearly half of those died there. When Willard closed in 1995, workers discovered hundreds of suitcases in an abandoned building’s attic. Many of them seemed untouched since their owners packed them decades earlier, before entering the institut­ion. 

Willard closed in 1995, 
Hundreds of suitcases remained from the patients who never returned home.
SMH

We learn who these invisible people were, prior to being committed behind Willard’s hospital walls, largely from the clothing and per­sonal objects left behind. The objects speak about fam­il­ies, friends, careers, sports, study­ing, writing and travel­l­ing, but also about loss and is­ol­at­ion. See their lives coming apart due to unemploy­ment, loved ones dying, loneliness, poverty or some other crisis.

The collection raised difficult questions. Why were these people committed into this in­stitution, and why did so many stay for so long? How were they treated? What was it like to spend years in a closed institution, shut away from a society that wanted to distance itself from these people? Why did most of the patients live out their days at Will­ard? What happened to their families?

The Willard cemetery opened in 1870, a year after the instit­ut­ion opened. Most of the 5,776 graves bore only numb­er­ed, cast-iron markers. These were the relics of the thousands of pat­ients who spent much of their adult lives confined in a state asylum.





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